View Full Version : Pcos
kayleigh.eaves
10-01-2008, 09:43 AM
I was diagnosed with PCOS 7 years ago, i have been on the medications Dianette, Metformin, Spironilactone, since my diagnosis. My periods have always been absent and my ultrasound scans have all been suggestive of cysts, i am now at the end of my tether and i have been taking rimonabant accomplia to assist with my weight as it is constantly increasing no matter what i do. no at the age of 21 i am considering a hysterectomy!! i have come to the terms that i will never have children and i understand this. But will my doctor refer me for a hysterectomy if i tell them i want one and will he NHS pay for it?
BLG1007
10-01-2008, 11:11 AM
Kayleigh,
I understand your frustration! DO NOT GET THE HYSTERECTOMY! I know that it feels like you will never be thin, you will never have children, and you will always be a hairy chick, but there are things out there that can help you!! Try the Insulite PCOS program. I have been on it a little over a month and I am starting to notice big changes! My appetite is more controlled, I am losing some weight, my acne is slowing, my hormones feel more manageable. You don't want to take away what makes you a woman. Also, women with PCOS CAN CAN CAN have children, it happens allllll the time. Yes it takes some time, but it CAN CAN CAN happen!!! PLEASE I AM BEGGING YOU check do research before you give up. Check out Insulite, they will work with you so you can be on the program. Check out the PCOS Association website. RESEARCH BEFORE YOU MAKE A MAJOR DECISION. Plus if you think its bad now, if you remove your uterus and such, you will have to be on hormone replacement therapies for the rest of your life, and your life might get cut short due to being on the medications. HRT's are now being linked to many cancers and other major illnesses. When you have PCOS you HAVE TO TAKE YOUR HEALTH INTO YOUR OWN HANDS!!!!!!!!!!!!!!!! Even if in the end you still choose to have a hysterectomy in some countries you have to be a certain age or have a certain illness before they will do it for fear of making a mistake when you are 21 and at 31 you wish you wouldn't have done it because you found out that you could've had children or that your symptoms are MUCH WORSE than before. I cannot stress enough that you research/pray more before making such a decision.
TAKE CARE!!!! DO NOT GIVE UP!
BLG1007
PS.Trust me I know where you are in all this. I am 26 been married 2 years and I want to have children so bad I can taste it. I have researched, I am getting my body ready so when God blesses me with them, I will be fully ready to take care them and live a healthy life!
jendix78
10-02-2008, 05:26 AM
I have to agree with BLG. Do not get a hysterectomy. There are options out there... and I strongly suggest you do som research into PCOS on your own since many DR's cannot fully explain it to you. You can have children, you can control your weight, you can feel GOOD about yourself.
I started the Insulite system less than a week ago and I feel great... you can also see many other experiences with Insulite here: http://www.soulcysters.net/where-insulite-girls-172211/ Even if it's too expensive for you there are other options. I strongly suggest checking out the forums at soulcysters.net, there is a huge support group and a TON of information readily available for all of us with PCOS.
I'm 30 now and would do anything to have a baby on my own... but I know with time and work on my part (diet, exercise, insulite) it will come.
Do not rush into a rash decision that you could end up regretting for the rest of your life!
drshana
10-02-2008, 09:36 PM
I was diagnosed with PCOS 7 years ago, i have been on the medications Dianette, Metformin, Spironilactone, since my diagnosis. My periods have always been absent and my ultrasound scans have all been suggestive of cysts, i am now at the end of my tether and i have been taking rimonabant accomplia to assist with my weight as it is constantly increasing no matter what i do. no at the age of 21 i am considering a hysterectomy!! i have come to the terms that i will never have children and i understand this. But will my doctor refer me for a hysterectomy if i tell them i want one and will he NHS pay for it?
Hello, friend,
I'm so sorry to hear about your struggles with PCOS and your inability to lose weight. Our take on the pharmaceutical treatment of PCOS is that there is no one drug on the market that will heal PCOS. Medications are aimed at suppressing the symptoms of PCOS without addressing the underlying cause of PCOS, in most cases. I urge you to try other means to heal your PCOS, including dietary changes, exercise, and nutritional supplementation.
Your doctor will probably not recommend a hysterectomy unless you were having heavy and painful periods or at risk for ovarian or uterine cancer.
I always want to let you know that PCOS symptoms can persist even after a complete hysterectomy. PCOS is a syndrome with a myriad of symptoms and body systems affected.
The underlying cause of PCOS in most cases seems to be insulin resistance. This in turn leads to hormonal imbalances such as increased testosterone and other androgens (male hormones).
Hormones are produced in several places in the body: the ovaries, the adrenal glands, and even in fat cells! Simply removing the ovaries may have some effect on the hormone imbalance, but not necessarily.
The weight gain associated with PCOS is intricately related to insulin resistance. Losing weight helps to improve insulin sensitivity, and vice versa: becoming more sensitive to your insulin helps you to lose weight.
Please let me know if you are interested in the PCOS Insulite System, as I believe it could really help you. Please do write in again with any other questions.
lbignall
11-10-2008, 07:50 AM
[FONT="Comic Sans MS"][SIZE="3"]Hey,
I am so frustrated no-body seems to give me any answers including my doctor, i was diagnosed with PCOS about 2/3 years ago, since then i have had scans (ultrasounds) on numerous occasions which have come back with no cysts showing, i have absent periods i have only ever had 1 period in my life! until they put me on the pill, there just doesnt seem to be any answers, im scared that i may not be able to have children in the future, i am only 23 yrs old, my doctors just keep telling me there is nothing they can do! alot of people on this site have said they are on medication etc but i havent been offered anything apart from the contraceptive pill, does anybody have any advice (O:
drshana
11-11-2008, 08:27 PM
[FONT="Comic Sans MS"][SIZE="3"]Hey,
I am so frustrated no-body seems to give me any answers including my doctor, i was diagnosed with PCOS about 2/3 years ago, since then i have had scans (ultrasounds) on numerous occasions which have come back with no cysts showing, i have absent periods i have only ever had 1 period in my life! until they put me on the pill, there just doesnt seem to be any answers, im scared that i may not be able to have children in the future, i am only 23 yrs old, my doctors just keep telling me there is nothing they can do! alot of people on this site have said they are on medication etc but i havent been offered anything apart from the contraceptive pill, does anybody have any advice (O:
Hello,
Thanks for writing in! I'm sorry to hear about your frustration with the medical world. We do not recommend oral contraceptives as a treatment for PCOS because they are synthetic hormones that mask some of the symptoms of PCOS rather than fixing the problems. Treating absent menses or other symptoms with oral contraceptives does not treat the underlying disorder of PCOS and when the contraceptives are discontinued, the PCOS symptoms will persist.
Our philosophy is to treat the cause of the disorder so that there is no longer a need for using contraceptives. Of course if you are using birth control to prevent pregnancy, you will need to find an alternate form of contraception (condoms, diaphragm, etc.) if you decide to discontinue the birth control pill! The supplements on The PCOS System do not do the same thing as the birth control pills, they do something even better! They work to correct the underlying cause of PCOS.
Here is some general information about the PCOS System. The Insulite PCOS System consists of five elements, all designed to work together to address PCOS and its underlying cause, insulin resistance.
The System is comprised of supplements, diet and exercise guidelines, addiction awareness and customer support. We provide ample customer support because we advocate lifestyle changes, and we know that these types of changes can be difficult to make without some help!
The supplements are designed to improve insulin sensitivity, help you lose weight, reduce the symptoms of PCOS, correct the hormonal imbalance of PCOS, and help manage the deleterious consequences of having elevated insulin. Here is a link to a page on our website that describes the supplements in detail: http://www.pcos.insulitelabs.com/PCOS-Elements.php
I hope to hear from you again! :)
Gingit
11-12-2008, 12:59 AM
I am 25 years old and was just diagnosed with PCOS last week. My husband and I have been trying to get pregnant for 8 months now and I've only had two periods since going off the pill. I can't for the life of me understand how I got this or where it came from. My understanding is it's something you always have, but I had normal periods from age 14-20 (which is when I went on the pill). I also don't fit the profile in that I have none of symptoms that go along with PCOS. My insulin levels are low (instead of high like they usually are), and I'm just wondering if there's anyone else out there with a similar situation. I know I have cysts all over both ovaries because I saw them on ultrasound, but I'm so frustrated - my doctor started me on progesterone and I will be on Clomid soon, but I just don't know what to think...
drshana
11-14-2008, 11:53 PM
I am 25 years old and was just diagnosed with PCOS last week. My husband and I have been trying to get pregnant for 8 months now and I've only had two periods since going off the pill. I can't for the life of me understand how I got this or where it came from. My understanding is it's something you always have, but I had normal periods from age 14-20 (which is when I went on the pill). I also don't fit the profile in that I have none of symptoms that go along with PCOS. My insulin levels are low (instead of high like they usually are), and I'm just wondering if there's anyone else out there with a similar situation. I know I have cysts all over both ovaries because I saw them on ultrasound, but I'm so frustrated - my doctor started me on progesterone and I will be on Clomid soon, but I just don't know what to think...
Hello and thanks for writing in! Many women with PCOS are low in progesterone and supplementation can be helpful. Did your doctor prescribe a bio-identical progesterone? With regard to Clomid, please remember that this therapy does not affect the underlying disorder present with PCOS and, at some point, it will be necessary to treat the disorder and not just the symptoms.
The topic of women and PCOS without insulin resistance is still not entirely understood in the medical community. Some women with PCOS hyper-secrete insulin but do not yet manifest insulin resistance. And in many women with PCOS, their ovaries are highly sensitive to insulin, so that even if their serum insulin levels are normal, the ovaries are highly reactive to that insulin.
To answer your question, I don't really understand why some women all of a sudden manifest symptoms of PCOS. What I can tell you is that there are many natural treatments to consider, including eating a whole foods, low-carb diet, exercise and nutritional supplementation. For more information about the PCOS System, please check out the website pcos.insulitelabs.com/.
Please write again with additional questions!
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